MS patient looks to controversial treatment for aid
By Aaron Taylor
EDMONTON — Siabhon MacQueen is a resident of Edmonton’s west end. She was diagnosed with relapsing-remitting multiple sclerosis in 1995 shortly after her third child was born.
On Dec. 11, she flew down to Casa Mesa, Calif., to receive the Dr. Paolo Zamboni’s controversial liberation treatment, also known as chronic cerebrospinal venous insufficiency.
The procedure has garnered much attention from the MS community. Many say it should be covered by medicare. Others say it is unproven and possibly dangerous.
This is Siabhon’s story:
CCSVI is the condition, not medical procedure. The procedure is called venoplasty.
*** Ms. MacQueen’s comments are misleading; most people with MS remain ambulatory; ending up in wheelchair or bed is not an inevitability. This overstatement would be quite frightening to someone newly diagnosed.
*** Regarding venoplasty, I’m aware of three individuals in this province who regret having had the procedure: one immediately had a stroke, another’s MS rapidly progressed and she is now in a nursing home, and the third is no better, no worse, but out $15, 000. *** Caveat emptor.
CCSVI is not a cure however DOES give a better quality of life , a very POSITIVE way forward atleast 20,000 have now had.she speaks the truth and the video is good.If you look at the POSITVES compared to negitives POSITIVES are there alot lot more.Congratulations to Siabhon MacQueen wonderful news , brilliant.I too had CCSVI and the audits and hard work the medics have had a new hospital built for CCSVI with their profits in POLAND NUMBER ONE to some.
Lynnie in UK :)
“Others say it is unproven and possibly dangerous” Who are these others????? I bet they do not have an illness that affects their lives!!!! Do these ‘people’ think that MS drugs are safe – or even work???? It’s easy to talk the ‘big’ talk when you can’t even do the walk … so to the nay-say6ers -SHUT UP and do something useful with your lives!!!!!My wife has MS and therefoere WE BOTH HAVE MS!!!!
I have ms, and i think venoplasty is an unproven and possibly dangerous treatment to a vaguely defined disorder.
POSITIVES out way NEGITIVES alot lot more so all the negitive responses dont look good POSITIVE = GOOD plus many are determind to make CCSVI look BAD via negitive people
Siabhon MacQueen is very positive indeed very and honest , many do end up bedridden is my words .Rachelle you are too negitive .
Hello, everyone,
My intention with this video was not to endorse either perspective on this subject. We encourage commenting but please refrain form personally attacking others.
Lynne, I’m not sure how you draw the conclusion that I am ‘negitive’ [sic] simply for stating facts. The three people I know who have had venoplasty are not doing well, feel duped financially, and are doing worse medically. To not look at ALL possible outcomes and only focus on thee ‘positive’ is to dangerously bury one’s head in the sand. There is a real backlash to anyone who properly questions this procedure and its risks as well as its potential benefits. That I do so doesn’t make me or anyone else ‘negitive,’ it makes us appropriately realistic. No way will I consider having this done until and only if the science supports it, the risks are clear and there are established protocols in place to mitigate those risks. It’s important that those who choose to undertake this procedure do so with informed consent. To bury the non-success stories is a huge disservice to us all. Like I said, caveat emptor.